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ARRIGE – 2025 ANNUAL MEETING: ACCESS AND AFFORDABILITY OF GENE THERAPIES

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October 28–29, 2025 – Strasbourg & Online

Making Gene Therapy Accessible to All: A Scientific, Ethical, and Global Challenge

Gene therapies are revolutionizing medicine. Thanks to genome-editing technologies such as CRISPR, new treatments are emerging to cure diseases that were once considered incurable. But how can we ensure that these innovations are accessible to everyone, and not just to a privileged few?

This is the central question of the 2025 ARRIGE Annual Meeting, an international association that promotes the responsible and equitable use of genome-editing tools. Over two half-days, the event will bring together researchers, clinicians, policymakers, industry representatives, biotech entrepreneurs, and patients to explore the ethical, social, economic, and political dimensions of access to gene therapies.

 

 

Program Overview

Tuesday, October 28
13:00 – Welcome and Opening
13:30 – Keynote Address
14:00 – Panel 1 – Technical Aspects: Understanding why gene therapies are so expensive and how innovation can make a difference
15:30 – Panel 2 – Global Access and Affordability: Perspectives from the Global North and South on disparities in access to gene therapies
17:00 – ARRIGE General Assembly

Wednesday, October 29
09:00 – Panel 3 – Ethical and Policy Challenges of Innovation: Striking a balance between incentives for innovation and equity in health
11:00 – Final Roundtable: Summary, perspectives, and commitments for the future
13:00 – Closing of the Meeting
 

 Distinguished International Speakers

Alta Charo (USA), Fabiana Arzuaga (Argentina), Marina Cavazzana (France), Kazuto Kato (Japan), Kiran Musunuru (USA), Michael S. Pepper (South Africa), Pawel Lukow (Poland), Julian März (Switzerland), Fyodor Urnov (USA), and other experts engaged in a global reflection on justice in health.

 

📢 Special Announcement

Good news! Thanks to the support of the University of Strasbourg, on-site registration fees are waived for students and postdoctoral researchers.
 

Why Attend?

  • To understand the real issues behind the cost and access to gene therapies
  • To exchange ideas with international experts and ask your questions
  • To take part in a collective reflection on equity and scientific responsibility


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